Emily Reuben

Co-founder and CEO of Duchenne UK.

Emily graduated from Oxford University with a degree in modern history, and had a successful career as a reporter and anchor for Channel 4 News and CNN International.

After her eldest son was diagnosed with Duchenne muscular dystrophy (DMD), she established the Duchenne Children’s Trust. The charity joined forces with Joining Jack and is now Duchenne UK. Since 2012 they have spent more than £27 million on accelerating the search for treatments and a cure for DMD, and have set up groundbreaking and award-winning collaborations, turning Duchenne UK into the UK’s largest funder of DMD research.

Emily has recently joined the Association of Medical Research Charities as a Trustee. She was a founding member of the ABPI’s eight person Patient Advisory Council, a member of the MHRA’s first Patient Advisory Group on the Innovative Licensing and Access Pathway (ILAP), and has co-chaired the ABPI’s Patient Organisation Forum.

Emily has advocated on behalf of patients around the world in meetings at the Food and Drug Administration (FDA), European Medicines Agency (EMA) the Medicines and Healthcare products Regulatory Agency (MHRA), National Institute for Health and Care Excellence (NICE) and Scottish Medicines Consortium (SMC). In 2017 Emily and her co-founder Alex Johnson were awarded a Points of Light award by the Prime Minister for their passionate work.

In 2023, she was awarded an OBE (Officer of the Most Excellent Order of the British Empire) for her services to charity and to people with Duchenne muscular dystrophy in His Majesty The King’s Birthday Honours list.